First patient has joined the CONNECT-HF trial

The CONNECT-HF trial team is excited to announce that the first patient has signed up to take part in CONNECT-HF! This patient is the first of 8,000 people who will take part in the nationwide clinical trial. The goal of the trial is to help improve the care and resources available to people who are leaving the hospital after receiving treatment for heart failure.

Why is CONNECT-HF being done?

Nearly 5.7 million people in the United States have heart failure, and heart failure is one of the most common reasons for hospital stays. Even though heart failure is very common, the care and resources available to people with heart failure have been limited in the past.

The CONNECT-HF trial team hopes to change that by looking at different plans of care for people with heart failure, to see what works best. The goal is to figure out how to provide the best care possible to people with heart failure, to help improve their health, and to help keep them out of the hospital in the future.

The first patient has signed up, so what happens next?

People who join CONNECT-HF will take part in the trial for one year after they leave the hospital. During that year, CONNECT-HF researchers will collect information from the participant about how they are feeling and whether they have had to go to the hospital for heart failure again.

The CONNECT-HF trial team will continue to enroll patients in the trial over the next three years. This will help researchers learn more about how to improve care for people with heart failure.

How do people sign up to take part?

Nationwide, 160 hospitals will be part of CONNECT-HF. If a doctor in one of those hospitals thinks a patient receiving treatment for heart failure may be a good fit for the trial, then a member of the CONNECT-HF trial team will speak to the patient about whether they may be interested in taking part.

CONNECT-HF Patient Advisers Meet in Durham, NC

This February, six of the eight patient advisers from the CONNECT-HF trial traveled to Durham, North Carolina to meet with the trial team at Duke Clinical Research Institute and provide input to help improve the trial experience for participants. The advisers, who have called themselves the Cardi-Yacks, traveled from across the United States to meet each other and the trial team in person for the first time, after many months of working together through phone calls and emails.

The Cardi-Yacks and trial team got to know each other over dinner, then spent the next day together for a series of working sessions. Through a mix of one-on-one interviews, focus group discussion, and written comments, the Cardi-Yacks gave feedback on everything from the informed consent process, to the materials that will be given to participants during the trial, to the overall design and interventions of the trial. The feedback that the Cardi-Yacks provided has been invaluable in helping the trial team develop materials that will provide the right information, in the clearest format, to participants who take part in CONNECT-HF.

In addition to providing their feedback, the Cardi-Yacks sat down for video interviews to talk about their unique experience as people with heart failure, as well as their involvement with the CONNECT-HF trial. View highlights from the Cardi-Yack videos here. Before their trip home, the Cardi-Yacks all got together for a fun afternoon touring Durham and Duke University by bus.

The meeting was a great opportunity for the CONNECT-HF trial team to gain perspective from a patient’s point of view and make improvements to the trial before patient enrollment. The CONNECT-HF trial team looks forward to continuing the partnership with the Cardi-Yacks as the trial progresses.

Here is some news for testing

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